Chronic Fatigue Syndrome has been renamed Systemic Exertion Intolerance Disease and proclaimed real by the Institute of Medicine.
And in other news the Ents have decided that Hobbits are not Orcs. All joking aside I think its fantastic that Chronic Fatigue Syndrome or Systemic Exertion Intolerance Disease is now being taken seriously. Someone also pointed out that SEID is DIES backwards which will never not be hilarious.
I know many people didn’t like the name Chronic Fatigue Syndrome as it never properly reflected all the symptoms. I have never really minded that much. I’ve found that tiredness is the root cause of most of my symptoms in one way or another. And I’m really not going to tell anyone about some of the stranger symptoms (like throwing up because of the heat). I don’t want to get all Shakespearean but its just a name. It doesn’t change what I have.
I think the most exciting thing about all this is doctors are doing more research into CFS/ME and changing the way it is diagnosed. I know many doctors use CFS as a “we don’t know whats wrong with you so we’re just going to call it CFS” thing. I think I was really lucky in that sense as I only had two blood tests both to check my iron levels before my doctor suggested that I might have CFS.
Though it is still annoying as while there are many clinics in England specialising in CFS/ME there are only three in Scotland. The only person I can talk to about CFS is my GP and even he admits that he doesn’t know everything and in some situations there isn’t anything he can do to help.
For now I’m just going to continue the way I always have and find some way of making a joke about my diseased brain. Actually I feel that all these diseased brains and sleeping problems could be a fantastic premise for a zombie story. Does someone want to get on that?